Everyone knows the story of this journey.....the trip we never expected to take, never dreamed we'd have to take.....but are on. Some say it's God's Will, and I'm sure it is (although, I've yet to understand why). For some reason, our Higher Power knew that we could withstand the hardships that the journey would exact upon us. Knew that we were strong enough to undergo whatever, whenever. There are days, though, that I question the wisdom of God's Plan (oops, sorry God!!).
This road trip has had more bumps and obstacles - if we could turn around.........boy, would we!! At every bend in the road, Bob has experienced a problem. Surgery for an abscess, in his groin, made worse by his weakened immune system which caused an infection. Back pain that was excruciating, seemed uncontrollable and unrelenting and caused multiple trips to the ER. A C. Diff infection that manifested itself during his Apheresis. And, last.....but certainly not least.....the damage to his stomach caused by Celebrex. The stomach pains ran a close second to the pain he once experienced, in his back. Finally, I think the road is clear!
- The abscess and the infection was cleared up.
- The pain, in his back now under control, by a wonderful Pain Management Doctor. He's now on very little pain medication.
- The C. Diff infection - cleared up.
- Celebrex - in the trash can!! And, stomach is beginning to feel better.
It was wonderful this morning, to have him request food and tell me he's starting to feel better. I had the inclination to "pinch" myself .....to be sure I was awake and hearing him correctly.
I've learned so much on this journey, and as I often say, things I could have lived a lifetime without knowing. I'm sure other caregivers of MM patients feel the same as I. We do what we do out of care, and concern, and love. We arm ourselves with the latest information, and we share our knowledge with each other. Little did I know, six months ago, that I'd be a member of such an "elite" group; friends in my same situation all over these United States. When I have my moments of darkness there's always someone with words of encouragement.
Still not sure why we were "chosen" for this journey, and maybe I'll never know. And, today I'm not going to waste time wondering about it......
Yep, I think it's gonna' be a wonderful "porch sitting" day.....
Even at dusk, or after dark, on warm nights.....this is such a comforting place to be. The sounds of the
cicadas, the coyotes calling to each other in the woods, the wind brushing the tops of the tall pines,
can all make us forget that our life isn't quite "normal".