tag:blogger.com,1999:blog-7581343569425944386.post5774450677352232960..comments2023-09-13T18:07:25.200-05:00Comments on Our Journey with Multiple Myeloma: Before our journey ends.......Anonymoushttp://www.blogger.com/profile/18287410826256587335noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-7581343569425944386.post-83033244425436266752012-06-25T14:27:40.264-05:002012-06-25T14:27:40.264-05:00Karen: I think I've just been "in a dark ...Karen: I think I've just been "in a dark hole"!! <br /><br />Bob never feels good, in spite of being in CR, and he's in pain (takes his meds, but does lots of sitting down).<br /><br />Thanks for checking in on us. I've crawled back out of my hole, and will be back blogging. Too many words, in my head, that have to get out!<br /><br />Hugs to you and Hugh.Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-12798300959760116592012-06-25T14:23:16.801-05:002012-06-25T14:23:16.801-05:00Terri: Just saw your comment...and I'm so sorr...Terri: Just saw your comment...and I'm so sorry, amid everything else, that you've lost your job. <br /><br />You are so right in that every patient is different. And I, too, HATE CANCER. Just wasn't how we thought our "end of life" would be.<br /><br />Hugs...Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-48319071669049941862012-06-17T21:25:46.316-05:002012-06-17T21:25:46.316-05:00hello sarah, just checking in on you and your hone...hello sarah, just checking in on you and your honey and letting you know i am thinking of you both. i hope the break from your blog means you are enjoying days with less pain and more serenity. the recent loss of both sean and paula have reminded me that it's good to reach out to others with whom we share both struggles and triumphs with life in myelomaville. as a cg to hugh, and now, a breast cancer patient myself, i find my connection (i am only a commenter, not a blogger) with those who express thoughts and feelings that resonate, inform, comfort, and inspire is such a gift. so please know i keep you both close to my heart with gratitude and admiration for what you have shared during your journey. hugs, karen sutherlandAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-79238864700475587412012-05-06T21:04:31.044-05:002012-05-06T21:04:31.044-05:00Hi Sarah. My husband David has also been diagnose...Hi Sarah. My husband David has also been diagnosed with MM. Oct of 2010. He has had 5 compression fractures and 5 inches in height. He had a sct in April of 2011. We can so relate to your blog entries. Each journey is unique. It just doesn't seem fair for them at all, but your right it has brought blessings to each of our lives. I just want to thank you for all your entries. There are times when I am reading our story. The ups and downs. The good days and the not so good days. Putting to words just how the caregiver feels. I am 56 and David is 60. We haven't even had the oportunity to retire yet. Matter of fact, I lost my job this week, after 38 yrs they have decided to send my job overseas. And the journey continues. We just never know where the next twist comes. I pray for both of you. I HATE CANCER. My cousin's husband will be going to be with the Lord soon - due to cancer. Thank you for your words. Terri Bayne in Lincoln Nebraska.Terrihttps://www.blogger.com/profile/17744065869739299828noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-52910390294741330032012-04-23T21:48:05.513-05:002012-04-23T21:48:05.513-05:00Kelly: Bless your heart - I am so sorry that you, ...Kelly: Bless your heart - I am so sorry that you, and your mom, are both having to deal with cancer.<br /><br />Thank you for your prayers....and you, two, will be in mine.<br /><br />Thanks for reading!!<br /><br />Hugs.....Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-7377122620353765742012-04-23T15:26:59.759-05:002012-04-23T15:26:59.759-05:00I am a 34 breast cancer patient (stage 3) and foun...I am a 34 breast cancer patient (stage 3) and found your blog through one of my blog readers. My mom was diagnosed with multiple myeloma almost 12 years ago and at that time was told she had, at best, 5 years to live. After many round of harsh chemo, a stem cell transplant that did not work, and some clinical trials, she still has the cancer, but is doing WONDERFUL. She has her bad days, don't misunderstand, but God is working a miracle in her. After reading almost your entire blog in one sitting, I see that God is working one for your husband as well. I will be in prayer for your family from here on out.Kellyhttp://kellysjournal2009.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-61120085841211882292012-04-13T23:16:08.447-05:002012-04-13T23:16:08.447-05:00Amen!! I'm not sure the "no pain" is...Amen!! I'm not sure the "no pain" is going to happen...but the "doing something you love" is a possibility!!<br /><br />Hugs from across the pond!!Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-84212758380033082612012-04-13T23:12:17.174-05:002012-04-13T23:12:17.174-05:00Angie: I'm anxious to know the results of Tann...Angie: I'm anxious to know the results of Tanner's MRI. The RFD helped....Bob's pain has been greatly reduced. <br /><br />Hugs.....and hope to see you next month while we're in your area!!Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-46283113228544461802012-04-13T23:08:13.806-05:002012-04-13T23:08:13.806-05:00Tracey: Thanks......are you an MM "victim&quo...Tracey: Thanks......are you an MM "victim" or a caregiver?Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-25129155693487856972012-04-13T23:00:12.391-05:002012-04-13T23:00:12.391-05:00Roo: The RFD did help!! He's able to walk &quo...Roo: The RFD did help!! He's able to walk "standing up straight" (still a little pain - but not as much). His shop, and his creativity is what keeps him going.<br /><br />Hugs...Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-36346237420327518502012-04-10T03:00:48.883-05:002012-04-10T03:00:48.883-05:00Here's to two great things in life - no pain a...Here's to two great things in life - no pain and doing something you love!! :Dferesaknithttps://www.blogger.com/profile/14818638535417712636noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-44141963027958115852012-04-09T21:09:27.908-05:002012-04-09T21:09:27.908-05:00I've been thinking about you Sarah! I hope you...I've been thinking about you Sarah! I hope your honey contiunues to do well, even at a slower pace.. Tanner, too, has been having back pains so we are waiting on an MRI to be scheduled to check things out. Maybe both of our "boys" can find some relief. Love from Texas!Angie Walkerhttps://www.blogger.com/profile/12249160418740699898noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-89937263109176318192012-04-09T15:34:55.621-05:002012-04-09T15:34:55.621-05:00God bless you both x xGod bless you both x xTraceyhttps://www.blogger.com/profile/04469902497999649828noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-18417503220474240542012-04-09T07:35:57.671-05:002012-04-09T07:35:57.671-05:00Hope the treatment helps! So good that he is stil...Hope the treatment helps! So good that he is still able to do what he loves doing, even if it is at a different slower pace.Roobeedoohttps://www.blogger.com/profile/02395340950409421904noreply@blogger.com