tag:blogger.com,1999:blog-7581343569425944386.post699043677690742423..comments2023-09-13T18:07:25.200-05:00Comments on Our Journey with Multiple Myeloma: Making Adjustments.....Anonymoushttp://www.blogger.com/profile/18287410826256587335noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7581343569425944386.post-65033328327974556092012-09-25T09:11:32.657-05:002012-09-25T09:11:32.657-05:00Sarah;
Thanks for sharing the "new normal.&...Sarah; <br /><br />Thanks for sharing the "new normal." I wish you both the best going forward. It is reasonable to expect that things will improve for your husband. I rebounded during my 2nd year with MM. In December, it will be five years. I'm not cured but I'm learning to manage the fatigue. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-38816726508748722682012-09-25T02:04:52.221-05:002012-09-25T02:04:52.221-05:00As a caregiver myself for a patient with aggressiv...As a caregiver myself for a patient with aggressive MM cancer, I've had to adjust how I look at life too. It hasn't been easy, but the worst thing is to see how much my husband is suffering. If he could just get a break from the pain and nausea so that he could even go for a short car ride or a trip to the store. Most weeks the only outing he gets is to the treatment center for his blood tests and chemo.<br /><br />I also hate to leave my husband alone. I've recently made the decision to not work outside of the home because I noticed he would suffer more depression when I was away. Plus I worried about him being alone anyway so I wasn't much good to any employers. I feel such peace now about making that decision. So far he hasn't had any falls but he is very unsteady on his feet so I worry about that constantly.<br /><br />Thank you for sharing the positive way you are walking through this journey.Shelley Bhttp://www.apebbleonthebeach.comnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-80216836524194502382012-09-24T23:21:58.001-05:002012-09-24T23:21:58.001-05:00I was on a 10 lb lifting limit for about 9 months ...I was on a 10 lb lifting limit for about 9 months before I graduated to 25 lbs. I am lucky, still working and still smoldering. You can read about my adventure at http://couldausedanotherday.com if you'd like.Scanfiehttps://www.blogger.com/profile/11573562629775711475noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-90417824629079982432012-09-12T20:30:39.917-05:002012-09-12T20:30:39.917-05:00Sandy: How blessed you are to have twin babies.......Sandy: How blessed you are to have twin babies....and how busy!!<br /><br />You are so right - the recent deaths of MM "victims" is very sobering. Makes one realize how this disease is always in control.<br /><br />Thanks for reading about our journey......<br /><br />Hugs to you and yours....Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-25583458761734453752012-09-11T13:55:35.912-05:002012-09-11T13:55:35.912-05:00We are so grateful for the added years we're h...We are so grateful for the added years we're having with our relative with MM... and it would be a wonderful leap to know that this disease is more chronic than terminal, but recent announcements of those recently departed is a harsh reminder that not all are in the 'chronic' phase. We adjust our lives - and with baby twins yet! - to meet the limitations of the family member with MM, and after some sleepless nights it is a harsh reminder that what could be done as healthy adults at 25 takes a huge toll at 45 with MM as part of the equation. Still, we are blessed to have a respite from the crisis mode of several years ago, and are hopeful as more and more research is done that perhaps this new 'normal' can become an acceptable normal for years to come.Sandyhttps://www.blogger.com/profile/02265922352726668243noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-66220712649524822532012-09-08T20:20:28.024-05:002012-09-08T20:20:28.024-05:00Karen: How surprised I was when you mentioned the ...Karen: How surprised I was when you mentioned the "new look of my site".....I wasn't aware the change I was looking at had been made public!! Looks like it needs some work.<br /><br />You, my sweet lady, are the one that is an inspiration....with all you have in your lives. <br /><br />I HAVE to find something to occupy my time (other than dogs and laptop)!! Let me know how the knitting goes. I don't think my fingers could work, in concert, enough to do that. But can't wait to see what you're making.<br /><br />Hugs.....Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-13965715945814589662012-09-08T13:11:45.914-05:002012-09-08T13:11:45.914-05:00dear sarah, what a wonderful post. you put perspe...dear sarah, what a wonderful post. you put perspective and encouragement forth in such a down-to-earth way. i can relate to both you and roo with the stupendous falls - i still see a series of ones that happened in slow motion, shuddering and sometimes muttering my horror aloud, but hugh shrugs them off and just goes on. in regards to finding activities to fill in with a lot of alone time, i am finally starting a knitting class next week. i love the new look of your site, and am so glad to hear from you; you are truly an inspiration to all us MM caregivers, doing a great job "making adjustments" with grace and your steadfast devotion to your honey. warm hugs, karen s. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-82295036439681392302012-09-07T18:16:00.728-05:002012-09-07T18:16:00.728-05:00Roo: You still work and yet you do all the reading...Roo: You still work and yet you do all the reading, sewing, knitting!! As well as taking care of your FL.....where do you find the energy??<br /><br />My honey is usually in bed by 7:30, so I need to take up some activity (other than the computer)!!<br /><br />I love all your creations....how talented you are.<br /><br />Hugs.....<br /><br />Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-42472293730908458132012-09-07T14:12:49.901-05:002012-09-07T14:12:49.901-05:00Oh Sarah, it's not at all easy to get used to ...Oh Sarah, it's not at all easy to get used to the "new normal" as one of the other MM people called it. My FL did one of those falls a few months back, ripping the towel rail off the bathroom wall and ending up flailing in the bath like an upturned beetle! Luckily I heard the crash and he hadn't locked the door and nothing was broken, but it does make me worry when I am out at work for 8 hours at a time - anything could happen! And yet we just have to keep on with the daily routine while we can, adjusting to new ways of managing the day-to-day. Getting used to him going to bed on his own at 9pm is my "new normal". Once I got over the lonely feeling, I realised I could get a lot of reading / sewing / knitting done while he sleeps. And then he's still there to snuggle up to - it's fine really! Just... different! You're doing great! :)Roobeedoohttps://www.blogger.com/profile/02395340950409421904noreply@blogger.com