tag:blogger.com,1999:blog-7581343569425944386.post3064117579263165343..comments2023-09-13T18:07:25.200-05:00Comments on Our Journey with Multiple Myeloma: Just two months, and three weeks.....Anonymoushttp://www.blogger.com/profile/18287410826256587335noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-7581343569425944386.post-48376497688258410952011-07-17T09:40:30.663-05:002011-07-17T09:40:30.663-05:00Denise: His onc. said that often the numbers will ...Denise: His onc. said that often the numbers will fluctuate, for unknown reasons, both up and down.....without intervention. I'm so in hopes that's what's going on.<br /><br />It's such an emotional roller coaster!!Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-79218205055410464112011-07-13T06:32:25.661-05:002011-07-13T06:32:25.661-05:00Sorry to hear this. It is always such a letdown. H...Sorry to hear this. It is always such a letdown. He may be able to stay stable though and I hope that he does. I've known folks who lingered at low numbers for quite awhile. Heck, I even know folks who lingered at high numbers without treatment. Too many times, I hear of folks whose transplants either didn't work, or worked for a very short time. I can't wait until the scientists/doctors find a better way to kick MM's arse.<br />DeniseAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-37762141377105887712011-07-03T21:54:57.419-05:002011-07-03T21:54:57.419-05:00Angie, Jodi, Lori & Feresa: Thanks for your en...Angie, Jodi, Lori & Feresa: Thanks for your encouraging words. I'm hoping since he's gotten this far (Near CR) once before, it can happen again. <br /><br />The trip to the mountains is coming at a good time.....and there will definitely be photos!<br /><br />Hugs to all of you!!Anonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-44291459789696584822011-07-03T05:19:13.254-05:002011-07-03T05:19:13.254-05:00Have a fantastic holiday - I insist.
I think I ...Have a fantastic holiday - I insist. <br /><br />I think I make the most of things now because of the myeloma not despite it - if that makes sense.<br /><br />My paraprotein jumped up to 15 in Feb from 'there but not sufficiently to quantify' in Jan. However by April it was back down to zero. And Bob's is only 'creeping up' - that's not to say it isn't a sod but just that it can be slapped back down again.<br /><br />Most importantly will there be holiday pics? :DAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-49107144616307333572011-07-02T23:54:32.582-05:002011-07-02T23:54:32.582-05:00Damn it! But boy am I impressed beyond words with ...Damn it! But boy am I impressed beyond words with your instincts, courage and confront of your 'gut' feelings. As I keep thinking more and more people are getting this 'rare' blood disease that we are so damn close to understanding it more and the answer is just right there! Somewhere! You, Bob and your daughter are in my prayers everyday.Lori Puentehttps://www.blogger.com/profile/11304096696996620733noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-89215473889041183062011-07-02T22:29:16.211-05:002011-07-02T22:29:16.211-05:00Sarah, I am so sorry to hear your news. MM is suc...Sarah, I am so sorry to hear your news. MM is such a frustrating disease. Since Bob has already experienced near CR, there is no reason to think that he can't do it again. In the meantime, enjoy your vacation to the fullest. As hard as it is, try not to think of those numbers while you are away. Treat yourself to some well earned relaxation. It's amazing what a little r&r can do for one's health.<br /><br />My thoughts and prayers are with you both.<br />JodiJodihttps://www.blogger.com/profile/07128765102912774603noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-38622654028634403102011-07-02T21:58:40.755-05:002011-07-02T21:58:40.755-05:00Sarah, I just want to cry. I'd had such a grea...Sarah, I just want to cry. I'd had such a great week (finally)...had good news from another MM friend....and now this. Why can't we ALL be UP together? Guess it is so we always have someone UP to pull "up" those that are down. :-(<br /><br />We are going with the numbers are still very low. So once you have thoroughly enjoyed your vacation....we will beat down the MM monster again. I have faith....and know you do. <br /><br />Many, many prayers coming your way. BIG Hug!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-42513703495206390862011-07-02T19:20:20.738-05:002011-07-02T19:20:20.738-05:00Dianne: Thank you! I know you've been there, a...Dianne: Thank you! I know you've been there, and understand the frustration. Just wish his near CR could have lasted longer.....but it is what it is. <br /><br />We're excited about a change of scenery!!<br /><br />SarahAnonymoushttps://www.blogger.com/profile/18287410826256587335noreply@blogger.comtag:blogger.com,1999:blog-7581343569425944386.post-79959230798104140082011-07-02T19:00:47.124-05:002011-07-02T19:00:47.124-05:00Oh, Sarah, I'm sorry to hear of Bob's rela...Oh, Sarah, I'm sorry to hear of Bob's relapse. Yes, you keep on dreaming - and I'll be praying - that those beautiful mountains and the fresh air will bring Bob's numbers right back down again. Here's to a wonderful trip, filled with all sorts of special moments.A Myeloma Widow's Journeyhttps://www.blogger.com/profile/12981186370330523189noreply@blogger.com